Imagine this: you wake up one morning and realize that you have bars around your bed. You are literally sleeping in a cage. Your hands and legs move but you seem to have little control over where they go. With a little focus, you can move your head from side to side, but there isn't much to see, which doesn't seem to matter because you can't see very well any way. Your sense of smell is strong, but that isn't a plus because you barfed on yourself sometime during the night and you smell like rotten milk. The one sensation that overwhelmingly makes itself known is hunger. Unable to form words, the most basic human sounds erupts out of you and you start to cry.
I think it is easy to think that the life of a baby is so easy. I do everything for Rowan. However, as I watch him struggle each day to make his body function the way that he wants it to, I realize how frustrating it must be to be so little sometimes. If an adult were in his situation, they would be considered an invalid. The human nature drives us to progress, to keep moving, but I know that there are moments when the task ahead must be overwhelming. Considering what he deals with every day, it amazes me that he is so patient and good natured.
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